Faridabad: Amrita Hospital organised a patient awareness programme to mark World Parkinson’s Day. During the event, the hospital announced the establishment of a Parkinson’s support group to provide assistance to patients and families affected by Parkinson’s disease (PD) and other movement disorders.
Parkinson’s disease is a neurological disorder that affects the body’s motor system, causing tremors, stiffness, and difficulty with movement. It is the second most common neurodegenerative disorder in the world and leads to significant morbidity unless treated early and appropriately.
Dr Sanjay Pandey, Head, Department of Neurology, Amrita Hospital, Faridabad said, “We recognize the challenges that Parkinson’s patients and their families face, and we are committed to providing a range of support services to help them manage their condition and improve their quality of life. The group will offer invaluable support to them as they navigate the challenges of managing this progressive neurological disorder. It would conduct regular meetings and provide educational resources and access to quality medical professionals.”
There is no nationwide registry for PD in India, but studies estimate the prevalence of 70-100 cases per 100,000 people. This disease is often underdiagnosed and misdiagnosed in India, particularly in rural areas, so the actual incidence may be higher. To this Dr Pandey added “Setting up a support group is important as patients often require a range of support services to help them manage their symptoms and maintain their independence. These include medical care from a neurologist or movement disorder specialist, physical therapy to help improve their mobility, balance, and overall strength, occupational therapy to learn strategies to perform daily tasks more easily, speech therapy for maintaining their ability to speak clearly, and emotional support as many patients experience depression, anxiety, and other emotional challenges.”“Parkinson’s disease can place a significant burden on patients and their families, particularly in India where there may be cultural expectations for family members to provide care for their loved ones. So there is a need for increased support services for both patients and caregivers,” Dr Pandey concluded.
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